pain, suicide, invisibility: dealing with an “imperfect” life part two

As I indicated in my previous post, I want to spread the word on the importance of September; September 8 – 14, and September 10th. Three organizations and causes are using this month to raise people’s awareness and understanding of chronic pain, invisible illness, suicide prevention.

Sparks of Hope's photo.

It seems most appropriate to begin with chronic pain. September is The American Chronic Pain Association’s September is Pain Awareness Month. The organization has several suggestions on how you, as an individual, or member of face book community can spread the word about chronic pain. For example:

Call your local government and community leaders to let them know about Pain Awareness Month and issues of pain and pain management.  Tools to communicate with governmental and community leaders are available  Click Here

Call your local media and ask them if they are doing a story on Pain Awareness Month. Tools to communicate with media can be found here

The ACPA also has toolkits concerning pain management; communication tools; pain awareness available through the website or facebook page.

 

Chronic Pain Info

Chronic Pain Info facebook page lives up to its goal of:  “education, sharing, support, understanding, compassion and humor.”

Chronic Pain Info says:

FEEL LONELY NO MORE-You Are Now In a SAFE ZONE!!!
Chronic Pain Info is a safe place to come learn, laugh, cry, support and vent. We are a tight-knit group of individuals who hang around to help others understand what they are experiencing and help them through the most trying times of their lives when they may otherwise have absolutely nobody on the planet to turn to for support!

On days when everything hurts, visiting a community that understands the language of pain can make a difference.

 

The week or September 8 to 14,  is Invisible Illness Awareness Week 2014. The week’s theme/focus for 2014 is Just One:

We are all just one… but if you live with an invisible illness you are one of over 100 million who are ill. You are someone. You matter. We hope to help those with chronic illness know that even though you may feel alone in your pain and limited in what you can give, together we can make a difference.

Here are just a few of the topics to consider when you write your Just One blog:

just one challenge you overcame despite the odds;

just one thing you would change about anything! (Your doctor, your home to make it more accessible, your clothes to make them more comfortable. Be creative!);

just one decision you made that was good (or not so good)

When you’ve written and posted your blog, you are encouraged to share by linking to the Just One Blog Posts. You can find Invisible Illness Awareness on facebook, too.

Invisible Illness Awareness , just like invisible illnesses, doesn’t disappear on September 15.

Invisible Illness Awareness Week

 

Sadly, chronic pain and chronic illness can lead suicide. September 10, 2014 is World Suicide Prevention Day. September is also suicide awareness month.

2014 World Suicide Prevention Day banner in English

The theme for 2014 is Suicide Prevention: One World Connected. The International Association for Suicide Prevention website has information, links to appropriate websites, facebook pages, and blogs. As well, you can download the banner in 40 languages, information on suicide prevention, and a long list of activities you can choose from to participate. As well, the IASP has a facebook presence, where more information including world-wide suicide prevention events and activities.

The statistics on suicides are staggering. Among youth/young adults and soldiers, the suicide rate is considerably higher than that of the general population. As the IASP notes: “Every year almost 800,000 people commit suicide; this roughly corresponds to one death every forty seconds.”

I have my own connection to suicides as I wrote in the post: paul and marc: a requiem. for suicide prevention in September 2011.

National Suicide Prevention Lifeline '1-800-273-TALK (8255)'

Other organizations, such as the Suicide Prevention Life Line offer crisis counseling:

No matter what problems you are dealing with, we want to help you find a reason to keep living. By calling 1-800-273-TALK (8255) you’ll be connected to a skilled, trained counselor at a crisis center in your area, anytime 24/7.

 

So, these September awareness issues are important to me. The publication of Part Two was delayed due to my chronic pain.

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11 thoughts on “pain, suicide, invisibility: dealing with an “imperfect” life part two

  1. mcreyscope September 9, 2014 / 1:40 pm

    I too suffer from chronic pain and fatigue. I admire that you have accepted your illness. Your post is well written and shared some great information. If you have a chance, visit my blog at http://www.mcreyscope.com. I try to write posts about my experiences with chronic disease and how I try to deal with it. Also, I have a Facebook page at http://www.facebook.com/mcreyscope. Hope to read more of your posts in the future.

    Like

    • phylor September 9, 2014 / 3:10 pm

      Hello: Thank you for leaving an encouraging comment.
      I will be sure to visit your blog and facebook page.
      This might be later rather than sooner as I am having pain issues.
      But, when I can, I will drop by.
      Nice to meet you!

      Liked by 1 person

      • mcreyscope September 9, 2014 / 4:53 pm

        Yes, I am familiar with pain too. Get to feeling better soon.

        Like

        • phylor September 10, 2014 / 9:51 pm

          Thanks. I am trying to get myself to a better place; to accept the new pain, at least for now. And if it can’t be altered, then figure out what I can do when it’s really bad, and drains all my energy. I will own my pain again; at some point it will have to let go of owning me.

          Like

          • mcreyscope September 11, 2014 / 8:31 am

            Yes, you must not let it be in control. For me, it was accepting that it wasn’t going away. Then, finding ways to deal with it, to better manage it. Tough road. Many potholes to avoid. Good luck!

            Like

            • phylor September 11, 2014 / 9:06 am

              I had come to accept that my pain wasn’t going away, too. That was part of taking ownership of my pain. I had chronic pain, but chronic pain didn’t have me.
              That was before this year when the types of pain I have in my face increased, and existing pain, there and elsewhere got worse.
              Going to try a few things to see why this sudden increase (specialist, special dental x-rays. But, at some point, I will have to wrestle back ownership. Right now, pain has me.
              Thanks for the good luck wish; at this point I could use some.

              Like

  2. phylor September 8, 2014 / 8:20 pm

    For some reason, the reply is posted before the question. I’m responding to summerstommy2 comments.

    Like

  3. phylor September 8, 2014 / 7:13 pm

    Hope your dark shadow disappears in the sunlight, but unfortunately, invisible illness can be a life long companion. You could write a Just One post using the suggestions, or coming up with your own Just One.
    I hope the tests were ok and the doctor has good news.
    I am so sorry to hear you are shadowed; remember there are people who share your illness, or understand what it means to you to have such a thing.
    Thanks so much for ALL your comments. You are an inspiration and an “up-lifter.” in so many ways.
    Good luck, my friend.

    Like

  4. summerstommy2 September 8, 2014 / 2:52 pm

    Good to read your words again phylor. I hope you are feeling better. I read your blog thinking how I could help and contribute in some meaningful way then I got to the bit about invisible illness and realised that is what I have. I live with it everyday of course but it doesn’t really impede too much on my life other than exist as a dark shadow behind me, though ever growing closer I have to say. I go to see my dr next week to see what the latest tests have revealed. I know I am doing ok compared to many other people. I have written a little about it on my blog at various times. I see it as part of who I am. You take care, excellent initiative to promote these awareness support networks.

    Like

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